Does anyone have health problems that makes it difficult to deal with your children or your life? I have psoriatic arthritis which is an auto immune disease and there is no cure for it. As a result I have spondylitis which is an inflammation of the vertebra. It is a form of spondylopathy. In many cases, spondylitis involves one or more vertebral joint as well, which itself is called spondylarthritis. It causes sever back pain and migraine headaches. On the days that it flares up like earlier today I can barely walk and the pain is severe even with the medication I have.
Don't have any known illnesses myself but my partner has... a lot. Although no severe cases as you it's quite a list. She has a skin condition, so even bumping into something will result in a bruise or bleeding, also rain and warmth gives rashes, also resulting into bleeding ( even if not scratched ). Astma, a ton of allergies, including lactose intolerance. What I'm actually surprised about is the fact that it doesn't bother me in any way. I know that if people have a person amongst them that has a condition they are usually bothered by it, but not me at all. I can just drink milk, need to give her the better half of an umbrella or make sure there is a window open if she gets out of the shower ( for cool air circulation ). Is it not a big fuzz in general or am I just dealing surprisingly well with it ? As for your condition, is there no way of treating it? As the medicines are not helping as you say. I'm not familiar with all the terms you used but my image so far is that it has to do with the bone marrow and spine and the areas surrounding that, wouldn't be surprised if they haven't found/invented a treatment yet. Or would this be very expensive ?
There are treatments but they are hit and miss whether they work for you. For the most part the medications do work but on occasions I have severe flare ups and the medications doesn't seem to help those. Psoriasis is basically your body's immune system attacking itself and most treatments suppress your immune system but due to my medical history those are not an option for me. The prognosis is not encouraging at all and most people die of heart attacks or strokes within 10 years of being diagnosed because of side effects from the medications. This is my 10th year so I think I'm glad my options of medications are limited.
I am sorry to hear you have such serious health conditions. My mom has a lot of serious health conditions and it is very difficult to see her be in pain a lot. I am sorry to hear that there are no cures for your conditions and that the side effects of medicines can be so dangerous.
